As your modest web-editor I stumbled upon this survey and passed the info over to the president as well as creating this page linking to it. Below are the details from LymeDisease.org who is running this survey:

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LymeDisease.org is conducting a new survey regarding the Impact and Cost of Lyme Disease. We need your participation! Our survey on Access to Care and Burden of Illness drew over 4,000 responses and turned out to be the largest survey of Lyme patients ever conducted in the United States. The survey revealed that 65% have had to cut back or quit work or school and 25% have been on disability. The results were published in a major peer-reviewed journal, Health Policy and used as the basis for a presentation by Lorraine Johnson, JD, MBA at Congressman Gibson’s forum in New York last year. The new survey continues this work and looks at the economic and quality of life impact of Lyme disease.

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To view their page of information, as well as their link to take the survey, click here.

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